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Foula’s report from European Lupus Meeting 2014

9th EUROPE LUPUS MEETING, 23-26.4.2014, ATHEN’S HILTON ,GREECE

LUPUS PATIENTS PROGRAM, SATURDAY ,26.4.2014, 08.30 -18.00

ORGANISING COMMITTEE
1. KIRSTEN LERSTROM ,LUPUS EUROPE CHAIR
2.FOULA MARKIDOU,LUPUS CYPRUS/CYPLAR-LUPUS EUROPE MEMBERSHIP TRUSTEE
3.MARIA BATZIOU ,POST CHAIR OF EULAR STANDING COMMITTEE OF PARE

IN COOPERATION WITH
1.MARIA KASIMATI ,MEMBER OF THE HELLENIC LEAGUE AGAINST RHEUMATISM ELEANA
2.A.AGGELIDAKI STARA VICE CHAIR ARTHRITIS FOUNDATION OF CRETE
3.BERNADETTE VAN LEEUW ,LUPUS EUROPE RESEARCH TRUSTEE
4.MARIOS KOULOUMAS,EULAR VICE PRESIDENT.REPRESENTING PARE/PRESIDENT OF CYPLAR
5.KATERINA KOUTSOGIANNI,CHAIR,ARTHRITIS FOUNDATION OF CRETE
6.THALIA GEORGA,PRESIDENT OF THE DODECANISIAN LEAGUE THALIA

AIMS OF THE LUPUS PATIENTS PROGRAM WERE:
1.To attract interest and engagement from people with lupus in Greece and Neighboring countries
2.To raise awareness about lupus
3.To inform about the difficulties in living with lupus in a European Country
4.To boost the operations of the National lupus groups and help engage new members and volunteers.

The program for people with lupus was divided in two SESSIONS :

A.The GREEK SESSION 08.30-16.00,designed for Greek speaking people:
8.30 -08.35 Welcome, Maria Batziou
08.35-09.30 GET ACQUAINTED WITH LUPUS-Prof.D.T Boumpas
09.30-10.30 LATEST DEVELOPMENTS IN DIAGNOSIS ,TREATMENT AND CARE FOR LUPUS- Prof.H.M.Moutsopoulos
11.00-12.00 LUPUS CO MORBIDITIES –G.Bertsias.Rheumatologist
12.00-13.00 LUPUS AND LIFE CHOICES (PREGNANCY, STUDIES, CAREER AND FAMILY) R.Rodopoulou, Psychologist.
14.00-15.00 COGNITIVE IMPAIRMENT IN LUPUS DISEASE –G.Tsivgoulis, Neurologist
15.00-15.55 WORKSHOP:OUR LIFE WITH LUPUS .THE PATHWAY FOR A GOOD ,LONGLASTING AND CREATIVE LIFE-F . Markidou,

Over 60 people have attended the Greek session , who expressed their enthusiasm and gratitude for it’s organization .
All the presentations, given by distinguished Greek Scientists ,were extremely interesting and informative, giving the audience a great opportunity for a wide, practical and valuable knowledge regarding lupus disease and all related issues such as diagnosis, symptoms, treatments, co morbidities, cognitive disorder, psychological implications ,life choices.

During the interactive Workshop ,a presentation was given concerning the several issues of our life with lupus and the way for a good ,long-lasting, and creative life. After the presentation, there was a very good discussion among the audience, giving each delegate the chance to express his/her views, ideas, suggestions etc. The lupus patients from Greece agreed for the need of a better organization of LUPUS GROUP/GROUPS in Greece ,asking for our assistance and support. We are already in the process of this organization in cooperation with our fellows of the Greek Leagues.

ENGLISH SESSION 16.00-18.00
16.00-16.45 LUPUS IN THE WORLD –MEET AND DISCUSS WITH FELLOWS FROM OTHER COUNTRIES/MEET LUPUS GROUPS AND PATIENT ORGANISATIONS LUPUS EUROPE-B. Van L eeuw
THE ARTHRITIS FOUNDATION OF CRETE-A.Aggelidaki Stara
HELLENIC LEAGUE AGAINST RHEUMATISM ELEANA-M.Kasimati
DODECANESIAN LEAGUE THALIA-T.Georga
16.45-17.00 HOT TOPICS AND NEW FINDINGS –FROM THE CONGRESS-K.Lerstrom
17.00-17.15 THE BENEFITS FROM BEING A MEMBER OF A LUPUS GROUP/MEMBER OF LUPUS EUROPE-M.Kasimati
17.15-17.30 LUPUS EUROPE STRATEGIC PLAN –B.Van Leeuw
17.30-17.50 DISCUSSION-VITAL AND EVERYDAY ISSUES OF LIFE WITH LUPUS
17.50.16.00 CLOSING REMARKS-K.Lerstrom

The English session was very successful and useful ,focusing on more practical issues such as sharing experiences, ideas, suggestions , views and strategies concerning the organization of lupus groups, active members of local/European leagues.

On the 23.4.2014. the Organizing Commitee of the EUROPEAN LUPUS MEETING, prof Boumpas and prof Boletis, organized a PRESS CONFERENCE at THE ATHENS ZAPPEIO HALL .Prof .Boumpas invited me to participate and speak about my personal experience of life with lupus. I have also given an interview for Greek tv chanel

Foula Markidou
May,2014