In 2013, the EULAR Annual European Congress of Rheumatology took place from 12-15 June in Madrid, Spain. The annual EULAR congress is now a major event in the calendar of world rheumatology. As the previous congresses during the last decade, Madrid 2013 provided a unique event for the exchange of scientific and clinical information.
LUPUS EUROPE was present at the EULAR Congress, with a stand in EULAR Village and attended the various sessions of relevance to SLE; PARE and EULAR Task Force on SLE. The LUPUS EUROPE and Felupus shared a stand in the EULAR Village. Blanca Rubio, Bernadette Vanleeuw and Kirsten Lerstrøm attended all week, where the rest of the board came to Madrid for a Trustees Meeting over the weekend of June 14-16. Felupus attended with a list of representatives - as patients and as PARE member delegates.
Together with the Spanish Federation of Lupus – FELUPUS, LUPUS EUROPE met old and new friends at our stand No. 74 in Eular Village. The congress covered the broad spectrum of the rheumatic diseases and included
basic science and clinical symposia,
presentation and discussion of difficult cases,
workshops and special interest group sessions,
What is New – WIN and
How to Manage/Treat – Hot sessions,
Edgar Stene Prize Winning Ceremony and
the sessions for Health Professionals and PARE organizations.
Industry-funded Satellite Symposia, dinners and lots of talking filled the agenda for Congress’ days. Originally it was planned to have all of the Board of Trustees attending but then the special patients’ rate for registration was deleted due to political restrictions. Luckily this was later reversed, so we could register more people to attend:
Chair Kirsten Lerstrøm, Vice-Chair Augusta Canzona, Member Manager Blanca Rubio, co-opted Trustee Bernadette van Leeuw.
On Friday, Secretary Anne Charlet and Treasurer Alain Cornet joined for the purpose of Trustees Meeting over the weekend.
Highlights – in particular for LUPUS EUROPE
We congratulate the achievements of
Winner of this year’s Stene Prize is Mette Toft from Denmark (some of you met her in Copenhagen 2011).
Kirsi Myllys, Finland, who presented her poster “A Finnish WIKIbook called SLE-Terminologiaa”.
Highlights from the programme
Two satellite symposia were scheduled regarding lupus:
“The real story of SLE: understanding the spectrum of the disease”, by Sudler Medical Communications.
“Insights, advances and outcomes: what’s next for lupus?” by GSK.