Strategic objective 1 – PEOPLE WITH LUPUS in Europe participate in, and benefit from, lupus research by Bernadette Van Leeuw (Trustee LUPUS EUROPE)
Bernadette Van Leeuw introduced the pre-defined strategies in order to achieve meaningful results on the first objective - PEOPLE WITH LUPUS in Europe participate in, and benefit from, lupus research.
The first strategy will be focused on establishing the link between the world of research and the patient’s needs. Further, LUPUS EUROPE will concentrate on gathering knowledge on the situation of lupus in Europe, focused on the patients’ side in order to stimulate patients to actively participate in research. As a European patient’s organisation, LUPUS EUROPE wants to help its members understand that their help is crucial for research and that each one of them is important to better understand lupus.
Last but not least, the fourth strategy is focused on making people with lupus more active in designing research and trials. The active support to EULAR standards of care and attendance to EULAR task force will be one of the key vehicles to achieve this.